They Learned the Language My Body Spoke
There’s a part of my diabetes story I don’t talk about often.
I’m an only child.
No brother. No sister. Just me.
For most of my life, that was simply a fact about me. But the older I get, the more I realize how much being an only child shaped the way my family experienced my diagnosis.
I was five years old when Type 1 diabetes entered our lives.
Five years old, and my parents were suddenly told that their only child had a condition that would become part of every day that followed.
There wasn’t another child in the house to divide their attention with.
Every low was their only child going low.
Every stubborn high was their only child feeling unwell.
Every injection, every hospital visit, every middle of the night check, every moment of fear…
It all came back to me.
At five, I only understood diabetes from my side.
I knew the finger pricks.
I knew the injections.
I knew food suddenly came with numbers.
I knew there were moments when everyone around me became serious because of something on a screen.
But I didn’t understand what it felt like to be my parents.
I didn’t understand the fear behind checking on me while I was a sleep.
I didn’t understand how watching me run around and play could suddenly come with calculations in the back of their minds.
I didn’t understand how exhausting it must have been to always be watching.
I was just being a child.
They were learning how to keep their only child safe while still making sure I got to have a childhood.
And I think that’s one of the strangest parts of growing up with Type 1 diabetes.
You eventually become old enough to understand memories you once experienced only as a child.
A nighttime blood sugar check was normal to me.
Now I see a parent who woke up because sleeping peacefully wasn’t always an option.
Having supplies everywhere was normal to me.
Now I see parents who were constantly thinking one step ahead.
At five, I thought diabetes happened to me.
Growing up taught me that a diagnosis can belong to one body and still change the lives of everyone who loves that person.
And it wasn’t only my parents who learned this new life with me.
My two aunties, my uncle, and my uncle’s wife did too.
Diabetes didn’t stay within the walls of our home.
It came with me everywhere.
To family gatherings.
To their homes.
To ordinary days spent together.
And because it followed me, the people who loved me made space for it too.
They learned what a low meant.
They learned when something needed to happen quickly.
They learned that a high could make me exhausted, irritated, quiet, or simply not myself.
They learned the signs.
They learned to notice.
And as a child, I didn’t realize how much safety there was in that.
If my parents weren’t right beside me, there were still adults around me who knew.
I never had to feel like diabetes made me complicated to have around.
It was already understood.
They learned not because diabetes belonged to them.
Because I did.
And then there were my cousins.
When I say I’m an only child, people naturally assume I grew up without anything resembling siblings.
But that has never felt completely true.
I had cousins around my age and cousins younger than me, and somewhere between growing up together, laughing, arguing, making memories and simply doing life beside one another, they became so much more than cousins.
They became the siblings life didn’t technically give me.
And what makes me emotional now is realizing that they were children too.
They didn’t have Type 1 diabetes.
They didn’t have to understand it.
But they wanted to.
They learned what “I’m low” meant.
They knew when I needed sugar.
They knew when we had to stop whatever we were doing for a few minutes.
They understood that sometimes a high wasn’t just a number.
Sometimes it was exhaustion.
Sometimes it was irritation.
Sometimes it was me becoming quieter.
Sometimes it meant I was too tired to leave the house even if we already had plans.
And instead of making me feel difficult for it, they learned me.
They learned that when my mood suddenly changed, sometimes I wasn’t upset with them.
My body was simply fighting something they couldn’t see.
They learned when to ask if I was okay.
When to help.
When to wait.
When to give me space.
And when the best thing they could do was simply treat me normally.
I don’t remember teaching them any of this.
That’s what makes it so special to me.
They learned by growing up beside me.
Because when you’re a child, you don’t notice people learning how to take care of you.
You just know who makes you feel safe.
And they made me feel safe.
There is a different kind of comfort in being around people who already understand why you suddenly need to stop, why you need a few more minutes, why you can look completely fine and still feel exhausted, or why sometimes the plan has to change.
They never made those moments feel like inconveniences.
They made room for diabetes without making me feel like diabetes was taking up too much room.
I was never just the daughter with diabetes.
I was never just the niece with diabetes.
I was never just the cousin with diabetes.
I was simply me.
And diabetes happened to be part of me too.
The older I get, the more I realize that everyone around me had a different role.
My parents were learning how to raise their only child with Type 1 diabetes.
My aunties, my uncle, and my uncle’s wife became another layer of safety around me.
And my cousins were growing beside me, becoming the siblings I technically never had.
Different roles.
But all of them were learning the same thing.
Me.
There were so many things I thought I experienced alone simply because they were happening inside my body.
Only I could physically feel the low.
Only I could feel what a stubborn high did to my energy.
Only I knew exactly what it felt like when diabetes became too much for the day.
But the people who loved me paid attention closely enough to recognize something they could never physically feel themselves.
They learned the meaning behind my silence.
They learned the difference between tired and diabetes tired.
They learned that sometimes “I don’t feel like going” meant more than simply not being in the mood.
They learned when I needed help without making me feel helpless.
They learned a language their own bodies never spoke.
And somehow, simply by loving me, they became fluent in it.
Maybe that is what family has meant to me all along.
Not people who could take diabetes away from me.
But people who learned enough that I never had to translate every part of myself for them.
My parents learned how to raise me.
My aunties, my uncle, and my uncle’s wife learned how to protect me.
My cousins learned how to grow beside me.
And I was the little girl in the middle of all that love, too young to understand just how many people were quietly learning an entirely new language simply so I would never have to speak it alone.
My diagnosis had my name on it.
The insulin went into my body.
The highs and lows happened inside my body.
But diabetes became woven into my family too.
Not because it belonged to them.
Because I did.
I may have been my parents only child.
But they made sure “only” never meant “alone.”